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Matthew Carr

Matthew Carr is an experienced leader in the nonprofit sector, specialising in strategic innovation, policy development, and creating meaningful impact for individuals living with inherited sight loss. As Special Projects Lead at Retina UK, Matthew leads initiatives that aim to improve patient outcomes, support pioneering research, and influence positive changes in policy for the Inherited Retinal Dystrophy (IRD) community.

With both professional expertise and personal insight into sight loss, Matthew brings a unique perspective to his work. As former Head of the England Vision Strategy initiative, he has successfully worked with politicians, health regulators, and other key decision-makers to develop policy frameworks that address the specific needs of the sight loss community. His work focuses on ensuring that clinical trials, healthcare strategies, and research efforts genuinely reflect the lived experiences of those with IRDs.

Passionate about driving change, Matthew is dedicated to advocating for fair access to healthcare and advancing opportunities for individuals living with sight loss. His commitment and vision continue to make a lasting difference in the field.

For more information visit: https://retinauk.org.uk

    UK Parliament

    Innovation in the Field of Rare Retinal Disease

    Imagine navigating life as your vision gradually fades, knowing that no treatment currently exists to halt or reverse the process. For thousands of individuals in the UK living with inherited retinal diseases (IRDs), this is a stark reality. Yet, within this challenge

    by Jim Shannon MP Matthew Carr
    January 25, 2025

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